Smith-Lemli-Opitz Syndrome (SLOS)

I would like to help spread the word and raise awareness about Smith-Lemli-Opitz syndrome (SLOS).

The estimated incidence of SLOS is between 1 in 20,000 to 1 in 40,000 live births, but this may be higher.*

This syndrome is a genetic and is caused by the body being unable to produce cholesterol.

Babies born with Smith-Lemli-Opitz syndrome (SLOS) have issues linked to autism, feeding, vomiting and constipation.  Severely affected children have birth defects such as small heads, cleft palates, scoliosis, life threatening heart defects and learning disabilities to name just a few.

There are no effective treatments and no cure so much more research is needed.

Action Medical Research for Children are trying to fund more research into this syndrome.   They need our support to continue.

Alex, Daniel and their mum Victoria

Read Alex and Daniels Story here

 Watch the video here.

I would encourage you to share this blog as I am a true believer in the best way to spread the word of mouth.  

Lets raise awareness together and get sharing!

*Source  – www.cafamily.org.uk

I really appreciate your comments and your time. Elaine